ELSI, governance, dissemination and sustainability
WP Lead – BBMRI-ERIC
Contributing partners: UMCG, RI MUHC, UCAM, UNEW, ERASMUS MC, ISGLOBAL, UOULU
WP7 will ensure ELSI governance model, data management plan and sustainability plan coordinated by, part of and to the best standards of BBMRI-ERIC research infrastructure.
Objectives:
- To ensure an appropriate ethical and legal governance framework including a data management and risk mitigation plan compliant with the required level of data security and privacy that is aligned with the 2017 OECD Council Recommendations and BBMRI-ERIC lead Code of Conduct for Health Research initiative.
- To promote long-term sustainability, wide acceptance, and support by the scientific community and society at large while managing the expectations of stakeholders (incl. citizens).
- To develop and execute dissemination/exploitation plan beyond scope of the project.
Deliverables: ● Governance context appraisal ● ELSI governance model and data management plan for federated cohort analysis ● Sustainability plan for EUCAN-Connect
