To measure the performance framework of EUCAN-Connect and to evaluate the progress of the project, the key performance indicators (KPIs) will be used as the major benchmarks. The KPIs of all the Work Packages will be published on the EUCAN-Connect website in a publicly accessible page. The website will keep a history of the previously published results for these KPIs to be able … [Read more...] about Key Performance Indicators (KPIs)
2nd EUCAN-Connect General Assembly meeting
On 9-10 September 2019, in Newcastle, UK, the 2nd EUCAN-Connect biannual GA meeting took place. This meeting was open to all EUCAN-Connect partners and was immediately followed by a 3 day DataSHIELD conference. During the meeting the participants presented and discussed the work that has been done, and determined the approach and plans for the next 6 months. With … [Read more...] about 2nd EUCAN-Connect General Assembly meeting
EU-CAN Flagship Projects: Exchange on ethical, legal, societal issues
On 30 August 2019, the 1st EUCAN ELSI Hackathon Workshop took place in London at Wellcome, bringing together the EUCAN Projects that successfully responded to call H2020-SC1-BHC-2018-2020 (Topic SC1-BHC-05-2018). The aim of the meeting was to identify synergies on ethical, legal and societal (ELSI), following the spirit of the joint meeting of the EU-Canada flagship projects on … [Read more...] about EU-CAN Flagship Projects: Exchange on ethical, legal, societal issues
Empowering Distributed Analysis Across Federated Cohort Data Repositories Adhering to FAIR Principles
A new article highlighting the approach on the data nodes infrastructure used in the EUCAN-Connect project has recently been published. Novel data collection tools, methods and new techniques in biotechnology can facilitate improved health strategies that are customised to each individual. One key challenge to achieve this is to take advantage of the massive volumes of … [Read more...] about Empowering Distributed Analysis Across Federated Cohort Data Repositories Adhering to FAIR Principles
EUCAN-Connect Catalogue Metadata Model is proposed
The description of studies from different online catalogues was reviewed and compared. The catalogues assessed comprised BBMRI-ERIC, BBMRI-LPC, Birthcohorts.net, InterConnect, LifeCycle, LifeLines, Maelstrom Research and RD-Connect. The assessment was done separately by the RI-MUHC and UMGC teams, and the results from both teams were compared and discussed. The … [Read more...] about EUCAN-Connect Catalogue Metadata Model is proposed